The unofficial "don't quote me on this" news from the nurse today is that after 5 doses of Indocin (Indomethacin) it seems to be working! They can no longer hear the PDA through a stethoscope and FINALLY did an ultrasound this morning. While it is not completely closed it is only a teeny tiny bit open and since Indocin has a really long half life it may just finish closing in the next little bit. This means that unless something crazy happens (knock on wood!) there is no need to do heart surgery! For the first time in almost 3 weeks I cried happy tears.
Max has also finished up his round of steroids and they have turned down the ventilator a few more notches, his blood gas tests are all showing in a normal range, and his CBC levels (a bloodwork test looking for infections) have decreased significantly, in a few days they will start feeding him again. (wait! before anyone panics, he has been getting his nutrition through an IV the last few days, they will start using the feeding tube again is all I meant) They told us he may end up losing weight because of not using the feeding tube, but he surprised us all by weighing in this morning at 2 lbs 6oz --this kid is tough!
The words 'Thank You' seem so inadequate right now, but its the best I've got. Thank you to everyone for the support, the prayers, the good wishes, the help, the check-ins, the reassurance, the friendships and the positive thoughts all sent our way (and into the universe for us ;) ). I have no real grasp on all the people who have been thinking of us, and I learn every day that more people are praying for our little man--some of them I've never even met.
5 comments:
Great news!!!
We are sooo glad to hear of all this! And I have so many friends praying so hard for all of you. You, Sol and Max are still in our thoughts and prayers and we hope to continue seeing such amazing updates. He's definitely a fighter and we are sending lots of love to you :-)
Guardian angels hover around his bed!
I am so so happy to hear that! I've been thinking of your sweet little family everyday and sending loads of prayers and love your way! You're so blessed and your little Max is an amazing little man....first being a surprise in the begining and then he couldn't wait to be here with you. He is a tough one!
Yes!!! What wonderful news!
Love,
Janica
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